You, sitting there with your hands covering your face, wiping the tears from your eyes, breathing heavily, feeling ever so broken inside; the one who is chronically ill, living with chronic pain. I see you. I am actually one of you. And I am terribly sorry that your pain has gotten so bad. As someone…
Tag: flare
How Lupus Makes Me Feel Grateful For My Birthday
It’s November, my favorite month of the year. I think it’s truly the most beautiful time of the year. A reminder that life is always changing and ongoing. Not only is my favorite holiday in November, but it’s also my birthday month. This year I will be 27 years old. I can’t explain why, but…
When You Can No Longer Smile Through The Pain
To be chronically ill and live with chronic pain, you have no choice but to try and be strong. You must smile through the pain, not show the worry on your face, pretend you’re OK when you’re not, and hold back countless tears. For the most part, I’d like to say that I do pretty well…
When the ER Cannot Help You and Your Autoimmune Disease
Where do you go when you feel the worst you’ve ever felt in your life? Where do you go when you feel like you need immediate medical attention or something bad is going to happen? The last resort when you just can’t handle it anymore? Most of us would answer, the hospital! Well that is…
What I Need You To Know About Your ‘Good Intentions’
I hear my cellphone ring on a Friday evening, I look down and I’m hesitant to answer because it’s you. I answer because I care about you and I know you care about me too. “Hey, do you want to meet up tonight for dinner, maybe a drink or something?”, you say. Silence comes…
My Answer To You, When You Ask “Why I Don’t Have Real Kids?”
I can hear the whispers and I can see the laugher. The way you look at me when you pass then look into the stroller I am pushing and you see furry animals instead of a human baby. I feel embarrassed and the look on your face makes me feel like I should be…
How Chronic Illness Showed Me My Best Quality: Perseverance
I can say growing up I never really had a ‘niche’. I was always trying new activities and trying to fit in. Since I was a little girl, I felt like I was an outcast or I just wasn’t up to ‘par’ like the other kids. As I continued to grow I ended up finding…
When Lupus Makes You Break Up With Your First Love: the Sun
When I was younger, people used to always compliment my skin tone. I would have so many family and friends tell me how no matter how long I would stay in the sun, I would never burn. I never used sunscreen and it would take me days to look like I even went into the…
One Tough Spoonie 