You, sitting there with your hands covering your face, wiping the tears from your eyes, breathing heavily, feeling ever so broken inside; the one who is chronically ill, living with chronic pain. I see you. I am actually one of you. And I am terribly sorry that your pain has gotten so bad. As someone…
Tag: emotions
How Lupus Makes Me Feel Grateful For My Birthday
It’s November, my favorite month of the year. I think it’s truly the most beautiful time of the year. A reminder that life is always changing and ongoing. Not only is my favorite holiday in November, but it’s also my birthday month. This year I will be 27 years old. I can’t explain why, but…
How Depression And Anxiety Have Shaped Who I Am Today For The Better
My life is a mess. I literally don’t know if I am coming or going… The problem is I can’t ever think back to a time where my life was anything but a disaster. As I’ve grown up, I truly thought I wasn’t affected by certain things in my childhood. Standing here today, I can…
What I Need You To Know About Your ‘Good Intentions’
I hear my cellphone ring on a Friday evening, I look down and I’m hesitant to answer because it’s you. I answer because I care about you and I know you care about me too. “Hey, do you want to meet up tonight for dinner, maybe a drink or something?”, you say. Silence comes…
What Happens If You Come Over Unannounced – Spoonie Edition
My phone rings and it’s a family member on the line saying, “Hey, I am right by your house, I am going to stop by and see you!”. “Great, of course I want to see you, see you soon”, I say. My heart sinks into my stomach and panic has just set in. When you…
How Chronic Illness Showed Me My Best Quality: Perseverance
I can say growing up I never really had a ‘niche’. I was always trying new activities and trying to fit in. Since I was a little girl, I felt like I was an outcast or I just wasn’t up to ‘par’ like the other kids. As I continued to grow I ended up finding…
When Lupus Makes You Break Up With Your First Love: the Sun
When I was younger, people used to always compliment my skin tone. I would have so many family and friends tell me how no matter how long I would stay in the sun, I would never burn. I never used sunscreen and it would take me days to look like I even went into the…
Dealing With Cancellation Policies When You Are Chronically Ill
OK, so maybe it’s just me… maybe I’m letting my emotions get the best of me. But I have something that need to get off my chest and share with others to see how they feel. This has been really bothering me lately and I doubt you’d ever imagine what it would be, but I…
One Tough Spoonie 