I can say growing up I never really had a ‘niche’. I was always trying new activities and trying to fit in. Since I was a little girl, I felt like I was an outcast or I just wasn’t up to ‘par’ like the other kids. As I continued to grow I ended up finding…
Tag: disease
When Lupus Makes You Break Up With Your First Love: the Sun
When I was younger, people used to always compliment my skin tone. I would have so many family and friends tell me how no matter how long I would stay in the sun, I would never burn. I never used sunscreen and it would take me days to look like I even went into the…
When Lupus Causes You to Feel Internally Torn
As I write this I can feel tears fall down my face and my heart break just a little bit more. I have never felt so torn in my life – physically and mentally. Since my diagnosis I haven’t really come to terms with what I have for many reasons… sometimes my doctor thinks other…
When Loved Ones Make You Feel Alone in Your Battle With Chronic Illness
My heart feels like it’s been broken into a million pieces. That I am standing in a dark room seeing all the scattered glass around me. Crawled into a ball I am trying to hold back the tears, trying to put the pieces of my puzzling life back together. It’s becoming harder and harder to…
One Tough Spoonie 