You, sitting there with your hands covering your face, wiping the tears from your eyes, breathing heavily, feeling ever so broken inside; the one who is chronically ill, living with chronic pain. I see you. I am actually one of you. And I am terribly sorry that your pain has gotten so bad. As someone…
Tag: disease
Top 5 Everyday Beauty Essentials – Spoonie Tools Edition
* Please note these are just opinions and recommendations based on my use. I am not a doctor or claiming that these are going to work for everyone, just based on myself. Please note that I am not responsible if you do not like or if this product does not agree with you. These are…
How Lupus Makes Me Feel Grateful For My Birthday
It’s November, my favorite month of the year. I think it’s truly the most beautiful time of the year. A reminder that life is always changing and ongoing. Not only is my favorite holiday in November, but it’s also my birthday month. This year I will be 27 years old. I can’t explain why, but…
My Life and Lessons with Lupus
I’m stuck. Stuck in a body that cannot keep up with its aspirations. I am only 26, where age has become nothing but a number. I say that because I almost never feel my own age. In reality, my age fluctuates from 56-86. But, it never stops me from trying. If Lupus has taught me anything,…
How Depression And Anxiety Have Shaped Who I Am Today For The Better
My life is a mess. I literally don’t know if I am coming or going… The problem is I can’t ever think back to a time where my life was anything but a disaster. As I’ve grown up, I truly thought I wasn’t affected by certain things in my childhood. Standing here today, I can…
When You Can No Longer Smile Through The Pain
To be chronically ill and live with chronic pain, you have no choice but to try and be strong. You must smile through the pain, not show the worry on your face, pretend you’re OK when you’re not, and hold back countless tears. For the most part, I’d like to say that I do pretty well…
When the ER Cannot Help You and Your Autoimmune Disease
Where do you go when you feel the worst you’ve ever felt in your life? Where do you go when you feel like you need immediate medical attention or something bad is going to happen? The last resort when you just can’t handle it anymore? Most of us would answer, the hospital! Well that is…
What I Need You To Know About Your ‘Good Intentions’
I hear my cellphone ring on a Friday evening, I look down and I’m hesitant to answer because it’s you. I answer because I care about you and I know you care about me too. “Hey, do you want to meet up tonight for dinner, maybe a drink or something?”, you say. Silence comes…
What Happens If You Come Over Unannounced – Spoonie Edition
My phone rings and it’s a family member on the line saying, “Hey, I am right by your house, I am going to stop by and see you!”. “Great, of course I want to see you, see you soon”, I say. My heart sinks into my stomach and panic has just set in. When you…
My Answer To You, When You Ask “Why I Don’t Have Real Kids?”
I can hear the whispers and I can see the laugher. The way you look at me when you pass then look into the stroller I am pushing and you see furry animals instead of a human baby. I feel embarrassed and the look on your face makes me feel like I should be…
One Tough Spoonie 