I can say growing up I never really had a ‘niche’. I was always trying new activities and trying to fit in. Since I was a little girl, I felt like I was an outcast or I just wasn’t up to ‘par’ like the other kids. As I continued to grow I ended up finding…
Tag: but you don’t look sick
When Lupus Makes You Break Up With Your First Love: the Sun
When I was younger, people used to always compliment my skin tone. I would have so many family and friends tell me how no matter how long I would stay in the sun, I would never burn. I never used sunscreen and it would take me days to look like I even went into the…
Dealing With Cancellation Policies When You Are Chronically Ill
OK, so maybe it’s just me… maybe I’m letting my emotions get the best of me. But I have something that need to get off my chest and share with others to see how they feel. This has been really bothering me lately and I doubt you’d ever imagine what it would be, but I…
When Lupus Causes You to Feel Internally Torn
As I write this I can feel tears fall down my face and my heart break just a little bit more. I have never felt so torn in my life – physically and mentally. Since my diagnosis I haven’t really come to terms with what I have for many reasons… sometimes my doctor thinks other…
How Lupus Changed Who I Thought I Would Be In My 20’s
Currently, I am 26 years old, going to be 27 in just a few months. Unfortunately, since I can remember, I have never felt completely “normal,” but I can say 16 was probably the best I ever felt. Looking back now 10 years ago, I had a vision of what now might look like. I had this image that…
8 Ways Lupus Has Changed My Behavior
I always find it funny how quick people are to judge. Recently, I’ve been told by a few people close to me that I’m not as “nice” as I used to be and that I’ve changed. My question to them is, what do you expect when you’re at a constant war with yourself? It’s…
One Tough Spoonie 