It’s November, my favorite month of the year. I think it’s truly the most beautiful time of the year. A reminder that life is always changing and ongoing. Not only is my favorite holiday in November, but it’s also my birthday month. This year I will be 27 years old. I can’t explain why, but…
Tag: awareness
When the ER Cannot Help You and Your Autoimmune Disease
Where do you go when you feel the worst you’ve ever felt in your life? Where do you go when you feel like you need immediate medical attention or something bad is going to happen? The last resort when you just can’t handle it anymore? Most of us would answer, the hospital! Well that is…
Grieving the Person I Was Before Chronic Illness
“Click, click” is all I hear while I sit in front of my computer screen biting my lower lip trying my hardest not to cry (telling myself I need to be strong). “Oh no,” I can feel a tear fall down my face; there is the beginning of me grieving the person I used…
What I Need You To Know About Your ‘Good Intentions’
I hear my cellphone ring on a Friday evening, I look down and I’m hesitant to answer because it’s you. I answer because I care about you and I know you care about me too. “Hey, do you want to meet up tonight for dinner, maybe a drink or something?”, you say. Silence comes…
What Happens If You Come Over Unannounced – Spoonie Edition
My phone rings and it’s a family member on the line saying, “Hey, I am right by your house, I am going to stop by and see you!”. “Great, of course I want to see you, see you soon”, I say. My heart sinks into my stomach and panic has just set in. When you…
My Answer To You, When You Ask “Why I Don’t Have Real Kids?”
I can hear the whispers and I can see the laugher. The way you look at me when you pass then look into the stroller I am pushing and you see furry animals instead of a human baby. I feel embarrassed and the look on your face makes me feel like I should be…
When Lupus Makes You Break Up With Your First Love: the Sun
When I was younger, people used to always compliment my skin tone. I would have so many family and friends tell me how no matter how long I would stay in the sun, I would never burn. I never used sunscreen and it would take me days to look like I even went into the…
Dealing With Cancellation Policies When You Are Chronically Ill
OK, so maybe it’s just me… maybe I’m letting my emotions get the best of me. But I have something that need to get off my chest and share with others to see how they feel. This has been really bothering me lately and I doubt you’d ever imagine what it would be, but I…
When Lupus Causes You to Feel Internally Torn
As I write this I can feel tears fall down my face and my heart break just a little bit more. I have never felt so torn in my life – physically and mentally. Since my diagnosis I haven’t really come to terms with what I have for many reasons… sometimes my doctor thinks other…
Please Don’t Mistake My Honesty About My Illness for Negativity
Life constantly teaches us lessons. Whether they are lessons we want or ones we didn’t think we needed. I am truly one of those people who see the glass both half empty and half full. I am neither extremely negative nor positive. To be honest I’ve always been right in between because I see life…
One Tough Spoonie 