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Bianca Miranda

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One Tough Spoonie

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I had to share this today! This makes me laugh so hard but it’s soooooo true! Y’all I literally stayed in bed the entire day and I am still tired and looking forward to going back to bed after I take a bath. Like is this real life right now? I always preferred my home and a fuzzy blanket. But wow it’s gotten so much worse. Now being what I’m assuming is a flare, I need all of this. To stay in bed and not leave the house. My body requires this after doing too much so I need to listen to it. I pray that there comes I day where this stop and go life style stops. I hope I learn to balance much better. And I hope I get this darn medication! And I pray even more that it works for me and it my body doesn’t decide to do anything stupid. Our bodies are so unpredictable. To be honest, it feels like lupus is my parent and it grounds me ALL the time 😓 #thankslupus #lupus #lupusawareness #lupussucks #autoimmunedisease #connectivetissuedisease #invisibleillness #sickandtiredofbeingsickandtired #butyoudontlooksick #rheumatoidarthritis #igottoomanyhealthissues #chronicillness #chronicpain #hippain #legweakness #lordhavemercy #grounded #homebody #ilovemybed #stayinghome #spoonie #spoonielife #curearthritis #themightysite #sickandtiredofbeingsickandtired 💜🥄🥄

Because he’s always by my side. Today was a stay in bed day and I’m so thankful for my pups. My little girl cuddles with me but not nearly as much as Louie does. He’s my cuddle partner. He makes everything so much better. I truly believe they help me feel less alone, especially days like today where I am struggling to get out of bed and to walk. I’m thankful for my dogs. He needs a haircut but he still looks SO cute 💜 #dogsofinstagram #dogsarelife #dogsarethebest #dogsareagirlsbestfriend #maltipoo #poodlesofinstagram #mydogsaremykids #rescuedog #herescuedme #lupusawareness #invisibleillness #dogmom #rheumatoidarthritis #butyoudontlooksick #lupus #autoimmunedisease #Spoonie #connectivetissuedisease #chronicillness #chronicpain #flareday #bedday 🥄

I am so happy to announce that my Spoonie tool segment that I’ve promised for months now is FINALLY LIVE. Like I shared with many of you, I wanted to share things with you guys that successfully helped me! So many of you asked me so here is the first segment! 5 Beauty essentials included. My shampoo and conditioner that everyone asks me about is there too! I’m so excited this is finally up and how long I’ve been waiting to finally put this in my blog form! My Spoonie tool page on my blog has said under construction for too long! So we have the first segment live. After this I am taking the night off officially lol. I’m so tired. And even though it’s blogging it still takes a lot of energy. With all brain fog I had to check this 100 times 😂😂 #autoimmunedisease #lupus #lupusawareness #chronicillness #chronicpain #chronicfatigue #spoonie #spoonietools #spoonielife #spoonieblog #blogger #chronicillnessblogger #themightysite #spoons #outofspoons #beauty #butyoudontlooksick #sickandtiredofbeingsickandtired #invisibleillness #live #newblogpost #rheumatoidarthritis #justkeepswimming #tips 💜💜 LINK IN BIO

Today I went to stand in line with my mom so she could get a book signed by some guy she likes on TV. I came like an hour late because I knew my body would be exhausted. Crazy that my mom was in line next to another lupus warrior. A man who has spoken at many of the walks around here and is a board member. So weird that out of the hundreds there my mom was next to him. All around us people were hearing about lupus. I stood in line but I struggled and was completely in tons of pain and out of breath by the time I got to the car. While I was there I picked up two books I’ve been wanting to get for a while but I haven’t had the spoons to go. Barnes and noble is literally my favorite store and books are my weakness. But I learned that just because someone has lupus and can handle something doesn’t mean i can. Each case is different. It’s so important for us to not compare ourselves to anyone even someone with the same disease!!!!! I am literally out of order the rest of the day because after i stopped at TJs another smart idea lol NOT. Currently my legs feel like jelly and I’m sure I will be paying for this. But I got a bible, not that I don’t have any.. I do. But not my own. I am going to work on my faith and relationship with God. I also wanted to get this other book because I’ve seen so many good reviews on it. I’m working on me- in total. Body mind and spirit 💜😊 #autoimmunedisease #lupus #invisibleillness #lupusfoundationofamerica #chronicillness #chronicpain #rest #books #barnesandnoble #catholic #workingonme #faith #bible #barnesandnoble #anxiety #butyoudontlooksick #invisibleillness #rheumatoidarthritis #sciatica #perserverance #betteryou #girlwashyourface #faith #mindbodysoul #christianbooks #justkeepswimming #booksarelife #blogger #writer 💜💪🏼🙏🏼

I believe in you 😘💜⭐️ my message today is to not give up, even when you feel like you should. You got this 💪🏼 I know how it feels to want to give up, but I’m here to remind you that you should believe in yourself and keep going! #autoimmunedisease #lupus #lupusawareness #rheumatoidarthritis #curearthritis #peoplehopetribe #dontgiveup #butyoudontlooksick #chronicillness #chronicpain #invisibleillness #yougotthis #believe #faith #mentalhealth #anxiety #depression #lupusambassador #mindfulness #thoughts 💜💜

Eucalyptus 😊 I hang it in my shower and on my bathtub 🛀😌 I absolutely love it and do think it actually makes a difference ! When you take a shower the steam helps release it! It’s known to help with stress, mental clarity, help with respiratory health, anti-inflammatory, mood enhancer, plus keep your shower cleaner ☝️ my husband even notices a difference and says he feels less congested! I would also say it keeps the bathroom always smelling crisp and clean. It’s seriously $3 for a bunch and it last for a while. I am strong believer in trying natural remedies along with my doctors approval and advice! If you haven’t tried it, I recommend it 😀 #autoimmunedisease #lupus #connectivetissuedisease #lupusawareness #rheumatoidarthritis #invisibleillness #chronicillness #chronicpain #butyoudontlooksick #Spoonie #Spoonielife #justkeepswimming #eucalyptus #shower #relaxation #clarity #anxiety #stressrelief 💜😍🥄

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