It hurts. It feels as if my heart has been ripped from my chest and stepped on right in front of me. I feel hollow, confused, lost, and devastated. Yet again, it’s another diagnosis. I never knew that it would just keep adding up. That my life would become a game of whack-a-mole. There was…
Category: spoonie
My Playlist For When Chronic Illness Gets Me Down
Ever since I was a little girl, I always loved music! Whether you could imagine this or not? I was in my middle school band and I could actually play several instruments. I was always so proud that I could read music and follow along. Even at the young of an age I was…
Welcome #AmbassadorsFirstClass For The Lupus Foundation of America, Florida Chapter
Have you ever been in a room surrounded with people just like you? In a way that they just get you. These people are actually strangers that you just met, but have come together for a common purpose. That you feel you can speak what’s on your mind without hesitation nor judgement. Thoughts that you’ve…
Dear Husband From Your Chronically Ill Wife(Valentine’s Day Letter)
Dear Husband, I would like to first say, I love you. That I couldn’t be more thankful nor grateful for anything else in my life as I am with you. We’ve spent many Valentine’s together and I couldn’t be happier. Though this one feels different. I am not sure why, but it just does. …
You Are Not Alone ( From Another Chronically Ill Person To You)
You, sitting there with your hands covering your face, wiping the tears from your eyes, breathing heavily, feeling ever so broken inside; the one who is chronically ill, living with chronic pain. I see you. I am actually one of you. And I am terribly sorry that your pain has gotten so bad. As someone…
My Open Letter To Lupus
Dear Lupus, I am writing to tell you that I want you out of my life! I am sick and tired of you interfering and wreaking havoc in my body. I hate the way you’ve changed my entire life! I hate the way I no longer do many of the things or activities I used…
What I’m Thinking About This New Year’s as a Chronic Illness Warrior
Three, two, one… Happy New Year! You look around the room and everyone is smiling, laughing, kissing and blissful. It feels like in that moment the world pauses. Everything comes to a complete stop waiting for the final countdown of the year. One of the few moments in life where time feels still. Some people…
I Am Not The Grinch, But I Do Lack Christmas Cheer – Spoonie Edition
I promise you, I am not the Grinch. Though you might think I am if you see me around Christmas time. I am one of those people, yes, the one who skips through the radio stations so fast, so they don’t accidently land on the Christmas station. I walk into the stores and feel like…
All I Want For Christmas- Is A Better Life With Lupus
It’s the holiday season. Everyone is cheerful and filled with glee. The stores are busy, almost everyone has packages outside their door, and beautiful holiday lights that make the night sky glisten. Everyone is starting to ask what you want as a gift for the holidays! Do you want new shoes, new top, or some…
Top 5 Everyday Beauty Essentials – Spoonie Tools Edition
* Please note these are just opinions and recommendations based on my use. I am not a doctor or claiming that these are going to work for everyone, just based on myself. Please note that I am not responsible if you do not like or if this product does not agree with you. These are…
One Tough Spoonie 